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	<title>Comments on: Scientologists: FDA should ban treatment for mental illness</title>
	<atom:link href="http://www.allaboutbipolar.com/2009/11/09/scientologists-fda-should-ban-treatment-for-mental-illness/feed/" rel="self" type="application/rss+xml" />
	<link>http://www.allaboutbipolar.com/2009/11/09/scientologists-fda-should-ban-treatment-for-mental-illness/</link>
	<description>Learning to live with bipolar disorder</description>
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		<title>By: mental health awareness month</title>
		<link>http://www.allaboutbipolar.com/2009/11/09/scientologists-fda-should-ban-treatment-for-mental-illness/comment-page-1/#comment-6441</link>
		<dc:creator>mental health awareness month</dc:creator>
		<pubDate>Thu, 04 Mar 2010 18:52:40 +0000</pubDate>
		<guid isPermaLink="false">http://www.allaboutbipolar.com/?p=1115#comment-6441</guid>
		<description>[...] to raise awareness about mental health conditions and the importance of mental wellness for all. ...Scientologists: FDA should ban treatment for mental illness ...Scientology is pressuring the FDA to require testing that will make a well-known treatment for [...]</description>
		<content:encoded><![CDATA[<p>[...] to raise awareness about mental health conditions and the importance of mental wellness for all. &#8230;Scientologists: FDA should ban treatment for mental illness &#8230;Scientology is pressuring the FDA to require testing that will make a well-known treatment for [...]</p>
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		<title>By: atorturedsoul</title>
		<link>http://www.allaboutbipolar.com/2009/11/09/scientologists-fda-should-ban-treatment-for-mental-illness/comment-page-1/#comment-2708</link>
		<dc:creator>atorturedsoul</dc:creator>
		<pubDate>Wed, 02 Dec 2009 18:52:30 +0000</pubDate>
		<guid isPermaLink="false">http://www.allaboutbipolar.com/?p=1115#comment-2708</guid>
		<description>The manufacturer says the cost of testing is not affordable to them. If the testing is required then they will go out of business and since the required testing will not be conducted then it will become illegal to use the machines. That will take it away. 

In this instance, science is not important to me. I say this because it truly isn&#039;t. ECT is used as a last resort. Imagine this scenario: You are suicidal and all other treatments have failed. You will end up committing suicide or you will be hospitalized indefinitely (possibly for life, if treatments don&#039;t work) for your own safety. The alternative is to try ECT. At that point, I believe whatever ECT might do to my brain can&#039;t be as bad as what a bullet would do. 

That is my official stance on ECT. I would rather have electricity shot through my brain than a bullet and I say this during a period of stability. 


In Ray Sandford&#039;s case, the laws simply need to be changed to eliminate loopholes allowing involuntary ECT. Even if the machines were tested, it would not stop cases such as that. This is all I have to say on this subject. Change the laws concerning involuntary treatment. Leave ECT as a treatment option. I agree to disagree and move on.</description>
		<content:encoded><![CDATA[<p>The manufacturer says the cost of testing is not affordable to them. If the testing is required then they will go out of business and since the required testing will not be conducted then it will become illegal to use the machines. That will take it away. </p>
<p>In this instance, science is not important to me. I say this because it truly isn&#8217;t. ECT is used as a last resort. Imagine this scenario: You are suicidal and all other treatments have failed. You will end up committing suicide or you will be hospitalized indefinitely (possibly for life, if treatments don&#8217;t work) for your own safety. The alternative is to try ECT. At that point, I believe whatever ECT might do to my brain can&#8217;t be as bad as what a bullet would do. </p>
<p>That is my official stance on ECT. I would rather have electricity shot through my brain than a bullet and I say this during a period of stability. </p>
<p>In Ray Sandford&#8217;s case, the laws simply need to be changed to eliminate loopholes allowing involuntary ECT. Even if the machines were tested, it would not stop cases such as that. This is all I have to say on this subject. Change the laws concerning involuntary treatment. Leave ECT as a treatment option. I agree to disagree and move on.</p>
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		<title>By: kimbriel</title>
		<link>http://www.allaboutbipolar.com/2009/11/09/scientologists-fda-should-ban-treatment-for-mental-illness/comment-page-1/#comment-2700</link>
		<dc:creator>kimbriel</dc:creator>
		<pubDate>Wed, 02 Dec 2009 02:44:30 +0000</pubDate>
		<guid isPermaLink="false">http://www.allaboutbipolar.com/?p=1115#comment-2700</guid>
		<description>Because someday I might want ECT and I would like to know for certain that the machine is safe.  And I&#039;m not talking about taking it away.  I&#039;m talking about testing it for safety and efficacy.  The APA has no way of knowing if it&#039;s safe or effective without double-blind clinical trials-- that&#039;s SCIENCE.  I&#039;m glad you live in an area where ECT is not forced on people.  In many areas of the country, it is.  Google RAY SANFORD and read up.</description>
		<content:encoded><![CDATA[<p>Because someday I might want ECT and I would like to know for certain that the machine is safe.  And I&#8217;m not talking about taking it away.  I&#8217;m talking about testing it for safety and efficacy.  The APA has no way of knowing if it&#8217;s safe or effective without double-blind clinical trials&#8211; that&#8217;s SCIENCE.  I&#8217;m glad you live in an area where ECT is not forced on people.  In many areas of the country, it is.  Google RAY SANFORD and read up.</p>
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		<title>By: atorturedsoul</title>
		<link>http://www.allaboutbipolar.com/2009/11/09/scientologists-fda-should-ban-treatment-for-mental-illness/comment-page-1/#comment-2699</link>
		<dc:creator>atorturedsoul</dc:creator>
		<pubDate>Tue, 01 Dec 2009 23:36:24 +0000</pubDate>
		<guid isPermaLink="false">http://www.allaboutbipolar.com/?p=1115#comment-2699</guid>
		<description>Let&#039;s examine how well medical equipment and medication is tested for safety. 

The very same FDA we are asked to trust with their testing approved many prescription medications that caused strokes, heart attacks and death. In a lot of cases, these were medications deemed safe by the FDA after relatively short clinical trials. People started taking these FDA approved medications and died from them. These were brand new drugs that received approval far too quickly without adequate testing. 

ECT, on the other hand, has been used for many decades. Want to talk about the risks? The risk of death from ECT is roughly 4 in 100,000. In Britain, about 138,000 people receive ECT each year and statistically that means 6 people would die from it. However, over 400 people die in Britain each year from accidental overdose of antidepressants. 

Let&#039;s talk about a drug that people believe to be very safe--Tylenol. Acetaminophen overdose is one of the most common poisonings worldwide. No other over-the-counter drug has a narrower range between therapy and toxicity than acetaminophen. 50,000 visit an emergency room and about 500 people die each year due to acetaminophen overdose. About 50% are accidental.

Now, they estimate that 100,000 people receive ECT each year in America. Statistically 4 of those would die, so 4 people will die in America due to ECT and around 250 will die due to accidental Tylenol overdose. Which sounds more dangerous? Tylenol, you say? Impossible. The FDA said it was safe. 

FDA testing isn&#039;t very comforting.


For the record, my mother works in a state run mental hospital and works with patients who have been abandoned by their families. The state decides what care they receive. ECT is not administered to them because they are incapable of giving informed consent and they do not have families that will provide consent. ECT is not given without consent in &quot;my neck of the woods&quot;.


I am curious...if you aren&#039;t interested in having ECT, then why is it a big issue for you? There are a lot of people who say ECT is the only effective treatment for their condition. If you are not going to receive ECT, why do you care if the machines are tested or not?


&quot;The manufacturers say the tests would be too expensive and therefore they would have to get out the business. Doctors could be jailed for offering their patients treatment.&quot;

Can you really justify taking away a treatment that people say works for them? It&#039;s a funny thing. The people asking for and receiving ECT aren&#039;t asking for safety testing. People who would never consider it are.</description>
		<content:encoded><![CDATA[<p>Let&#8217;s examine how well medical equipment and medication is tested for safety. </p>
<p>The very same FDA we are asked to trust with their testing approved many prescription medications that caused strokes, heart attacks and death. In a lot of cases, these were medications deemed safe by the FDA after relatively short clinical trials. People started taking these FDA approved medications and died from them. These were brand new drugs that received approval far too quickly without adequate testing. </p>
<p>ECT, on the other hand, has been used for many decades. Want to talk about the risks? The risk of death from ECT is roughly 4 in 100,000. In Britain, about 138,000 people receive ECT each year and statistically that means 6 people would die from it. However, over 400 people die in Britain each year from accidental overdose of antidepressants. </p>
<p>Let&#8217;s talk about a drug that people believe to be very safe&#8211;Tylenol. Acetaminophen overdose is one of the most common poisonings worldwide. No other over-the-counter drug has a narrower range between therapy and toxicity than acetaminophen. 50,000 visit an emergency room and about 500 people die each year due to acetaminophen overdose. About 50% are accidental.</p>
<p>Now, they estimate that 100,000 people receive ECT each year in America. Statistically 4 of those would die, so 4 people will die in America due to ECT and around 250 will die due to accidental Tylenol overdose. Which sounds more dangerous? Tylenol, you say? Impossible. The FDA said it was safe. </p>
<p>FDA testing isn&#8217;t very comforting.</p>
<p>For the record, my mother works in a state run mental hospital and works with patients who have been abandoned by their families. The state decides what care they receive. ECT is not administered to them because they are incapable of giving informed consent and they do not have families that will provide consent. ECT is not given without consent in &#8220;my neck of the woods&#8221;.</p>
<p>I am curious&#8230;if you aren&#8217;t interested in having ECT, then why is it a big issue for you? There are a lot of people who say ECT is the only effective treatment for their condition. If you are not going to receive ECT, why do you care if the machines are tested or not?</p>
<p>&#8220;The manufacturers say the tests would be too expensive and therefore they would have to get out the business. Doctors could be jailed for offering their patients treatment.&#8221;</p>
<p>Can you really justify taking away a treatment that people say works for them? It&#8217;s a funny thing. The people asking for and receiving ECT aren&#8217;t asking for safety testing. People who would never consider it are.</p>
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		<title>By: kimbriel</title>
		<link>http://www.allaboutbipolar.com/2009/11/09/scientologists-fda-should-ban-treatment-for-mental-illness/comment-page-1/#comment-2698</link>
		<dc:creator>kimbriel</dc:creator>
		<pubDate>Tue, 01 Dec 2009 22:32:26 +0000</pubDate>
		<guid isPermaLink="false">http://www.allaboutbipolar.com/?p=1115#comment-2698</guid>
		<description>Okay... but don&#039;t you think ECT machines should be TESTED? What is wrong with them being tested?  It&#039;s one of the most expensive psychiatric treatments out there... raise the price of the machines and test the machines.  I don&#039;t care what the APA says.  If someone is going to run electricity through their heads (which, if it was an industrial accident, would be treated as a clinical emergency) the machine should be tested.

Also: people ARE forced to get ECT all the time.</description>
		<content:encoded><![CDATA[<p>Okay&#8230; but don&#8217;t you think ECT machines should be TESTED? What is wrong with them being tested?  It&#8217;s one of the most expensive psychiatric treatments out there&#8230; raise the price of the machines and test the machines.  I don&#8217;t care what the APA says.  If someone is going to run electricity through their heads (which, if it was an industrial accident, would be treated as a clinical emergency) the machine should be tested.</p>
<p>Also: people ARE forced to get ECT all the time.</p>
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		<title>By: atorturedsoul</title>
		<link>http://www.allaboutbipolar.com/2009/11/09/scientologists-fda-should-ban-treatment-for-mental-illness/comment-page-1/#comment-2697</link>
		<dc:creator>atorturedsoul</dc:creator>
		<pubDate>Tue, 01 Dec 2009 19:28:00 +0000</pubDate>
		<guid isPermaLink="false">http://www.allaboutbipolar.com/?p=1115#comment-2697</guid>
		<description>The American Psychiatric Association says ECT is safer than a lot of medications used to treat psychiatric disorders. 

&lt;em&gt;&quot;who wants to course electricity through their brain on a machine that hasn’t even been tested for safety?&quot;&lt;/em&gt;

The thing with ECT is this: No one is forcing anyone to get it. Likewise, no one should be telling anyone they can&#039;t get it. 

I personally feel that religious groups &lt;strong&gt;&lt;em&gt;should not&lt;/em&gt;&lt;/strong&gt; be involved in making decisions concerning mental health care.</description>
		<content:encoded><![CDATA[<p>The American Psychiatric Association says ECT is safer than a lot of medications used to treat psychiatric disorders. </p>
<p><em>&#8220;who wants to course electricity through their brain on a machine that hasn’t even been tested for safety?&#8221;</em></p>
<p>The thing with ECT is this: No one is forcing anyone to get it. Likewise, no one should be telling anyone they can&#8217;t get it. </p>
<p>I personally feel that religious groups <strong><em>should not</em></strong> be involved in making decisions concerning mental health care.</p>
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		<title>By: kimbriel</title>
		<link>http://www.allaboutbipolar.com/2009/11/09/scientologists-fda-should-ban-treatment-for-mental-illness/comment-page-1/#comment-2696</link>
		<dc:creator>kimbriel</dc:creator>
		<pubDate>Tue, 01 Dec 2009 19:12:27 +0000</pubDate>
		<guid isPermaLink="false">http://www.allaboutbipolar.com/?p=1115#comment-2696</guid>
		<description>Am I missing something here?  It looks like they are just pushing for the safety and efficacy of ECT to be tested... which SHOULD be the case... who wants to course electricity through their brain on a machine that hasn&#039;t even been tested for safety?</description>
		<content:encoded><![CDATA[<p>Am I missing something here?  It looks like they are just pushing for the safety and efficacy of ECT to be tested&#8230; which SHOULD be the case&#8230; who wants to course electricity through their brain on a machine that hasn&#8217;t even been tested for safety?</p>
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		<title>By: atorturedsoul</title>
		<link>http://www.allaboutbipolar.com/2009/11/09/scientologists-fda-should-ban-treatment-for-mental-illness/comment-page-1/#comment-2492</link>
		<dc:creator>atorturedsoul</dc:creator>
		<pubDate>Tue, 10 Nov 2009 13:39:08 +0000</pubDate>
		<guid isPermaLink="false">http://www.allaboutbipolar.com/?p=1115#comment-2492</guid>
		<description>It is ridiculous. Hopefully, the FDA will see just how ridiculous it is before they make a terrible mistake.</description>
		<content:encoded><![CDATA[<p>It is ridiculous. Hopefully, the FDA will see just how ridiculous it is before they make a terrible mistake.</p>
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		<title>By: Cristina Fender</title>
		<link>http://www.allaboutbipolar.com/2009/11/09/scientologists-fda-should-ban-treatment-for-mental-illness/comment-page-1/#comment-2491</link>
		<dc:creator>Cristina Fender</dc:creator>
		<pubDate>Tue, 10 Nov 2009 11:20:13 +0000</pubDate>
		<guid isPermaLink="false">http://www.allaboutbipolar.com/?p=1115#comment-2491</guid>
		<description>I submitted a comment on the FDA&#039;s website.  Here&#039;s what it said:

It&#039;s ludicrous to believe that mental illness is all in one&#039;s head as Scientology is claiming.  Preventing treatment of mental illness opens up a lot of problems for society.  Do we want a world where mental illness is uncontrolled?  Medications are essential in controlling episodes and it&#039;s highly needed to regulate mental illness.  I hope that the FDA takes this all into consideration rather than listening to a cult that has no scientific backing.  Mental illness is as real as cancer and diabetes.  It should be treated as such.</description>
		<content:encoded><![CDATA[<p>I submitted a comment on the FDA&#8217;s website.  Here&#8217;s what it said:</p>
<p>It&#8217;s ludicrous to believe that mental illness is all in one&#8217;s head as Scientology is claiming.  Preventing treatment of mental illness opens up a lot of problems for society.  Do we want a world where mental illness is uncontrolled?  Medications are essential in controlling episodes and it&#8217;s highly needed to regulate mental illness.  I hope that the FDA takes this all into consideration rather than listening to a cult that has no scientific backing.  Mental illness is as real as cancer and diabetes.  It should be treated as such.</p>
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		<title>By: SharkGoddess </title>
		<link>http://www.allaboutbipolar.com/2009/11/09/scientologists-fda-should-ban-treatment-for-mental-illness/comment-page-1/#comment-4238</link>
		<dc:creator>SharkGoddess </dc:creator>
		<pubDate>Tue, 10 Nov 2009 07:04:43 +0000</pubDate>
		<guid isPermaLink="false">http://www.allaboutbipolar.com/?p=1115#comment-4238</guid>
		<description>&lt;span class=&quot;topsy_trackback_comment&quot;&gt;&lt;span class=&quot;topsy_twitter_username&quot;&gt;&lt;span class=&quot;topsy_trackback_content&quot;&gt;RT &lt;a href=&quot;http://topsy.com/twitter/torturedsoul&quot;&gt;@torturedsoul&lt;/a&gt;: Scientologists: FDA should ban treatment for mental illness...and the FDA is considering it. http://bit.ly/1eHam4 &lt;a href=&quot;http://topsy.com/s?q=%23WTF&quot;&gt;#WTF&lt;/a&gt;&lt;/span&gt;
&lt;div class=&quot;topsy_trackback_links&quot;&gt;[&lt;a href=&quot;http://twitter.com/sharkgoddess/status/5576727678&quot;&gt;Original tweet&lt;/a&gt;, &lt;a href=&quot;http://topsy.com/tb/www.allaboutbipolar.com/2009/11/09/scientologists-fda-should-ban-treatment-for-mental-illness/&quot;&gt;Topsy page&lt;/a&gt;]&lt;/div&gt;&lt;/span&gt;</description>
		<content:encoded><![CDATA[<p><span class="topsy_trackback_comment"><span class="topsy_twitter_username"><span class="topsy_trackback_content">RT <a href="http://topsy.com/twitter/torturedsoul">@torturedsoul</a>: Scientologists: FDA should ban treatment for mental illness&#8230;and the FDA is considering it. <a href="http://bit.ly/1eHam4" rel="nofollow">http://bit.ly/1eHam4</a> <a href="http://topsy.com/s?q=%23WTF">#WTF</a></span></p>
<div class="topsy_trackback_links">[<a href="http://twitter.com/sharkgoddess/status/5576727678">Original tweet</a>, <a href="http://topsy.com/tb/www.allaboutbipolar.com/2009/11/09/scientologists-fda-should-ban-treatment-for-mental-illness/">Topsy page</a>]</div>
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